a Neuroendocrine Cancinoma rather than a Neuroendocrine Tumour) is a very serious cancer much like the adenocarcinomas we see all the time including pancreatic cancer, breast cancer, prostate, lung, colorectal. Firstly, let me say that poorly differentiated (i.e. This whole thing has left my oncology team baffled that the diagnosed ‘Net’ appeared just to go away.Īny views or insight would be welcomed, this has been a very traumatic six months, although again I feel blessed to be healthy. I am of course massively relieved, but it has also left its mark on me as the neck surgery damaged my facial nerve and I have some face palsy which is emotionally very challenging. Three months on I have just had further head and neck And body CT scans and all appear healthy. DNA tests on both biopsy samples showed they were from me. The pathology results of this procedure showed no evidence of NETs again and the medical then worried that an administrative error may have mixed up the biopsies. The results of every scan was negative, no apparent cancer in the scanned organs, but the Oncology MDT still found it prudent to remove what remained of ‘the tumour’ in my neck plus the adjacent lymph nodes. I was referred to the NET’s oncology group at Edinburgh Western General who moved quickly to have CT and PET scans of abdomen, Lungs, chest, head and neck.ĭuring this long troubling and very worrying time it was interesting to all that the lump in my neck started to subside. A week later I was floored to hear the biopsy diagnosed it as a poorly differentiated Neuroendocrine tumour and my world began to collapse around me. The radiographer thought there was a small node that should be biopsies. It didn’t go away and my doc sent me for an ultrasound. In Feb this year I had my first Covid jab and three days later I noticed a lump in my neck – like a swollen gland. Hi Ronny, I’m sorry if I’m in the wrong place to tell this story that I thought/hope might be of interest.
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